Hi Misery guts
It sounds like you’ve had a very bad time of things.
Have you excluded the possibility of food chemical sensitivity? Some people are sensitive to chemicals naturally occurring in food including amines, salicylates and glutamates, as well as certain food additives. These can cause gastrointestinal as well as nervous system, skin, behavioural and other symptoms.
The clever guts diet is high in these food chemicals (and excludes many foods low in them), so it is possible this has aggravated your problems if you have food chemical sensitivity. For example, most fruit, many vegetables, olive oil, nuts and seeds, spices and herbs are all high to very high in these food chemicals. Many meats and especially fish if not super fresh are also high in amines, as are things like aged cheeses.
Your profile indicates you’re in Australia. Here in Oz the experts in food chemical intolerance are the Royal Prince Alfred Hospital (RPAH) in Sydney. They have an elimination diet for diagnosing this condition outlined in a really useful book they produce (available online). The Fedup food intolerance network (established by a couple who suffer from this condition) also have a wealth of info on their website.
Long story short, after becoming very ill about three years ago after a course of medication I was diagnosed with food chemical sensitivity by a specialist dietician in Melbourne. Similarly to you, everything I ate was making me sick. I tried a diet high in fruit and veg, nuts and seeds, kefir, and other organic foods and became much worse. I then went on the RPAH elimination diet. I couldn’t tolerate even many of the foods low in these food chemicals but felt like a new person after a couple of weeks after sticking to all the ones I could tolerate.
Slowly but surely after two years my health has vastly improving after getting to the bottom of the problem and gradually reintroducing the problem food chemicals. I’ve also done lots of work on improving my gut health, including through probiotics and intermittent fasting. An added benefit is that my pre-existing fructose malabsorption has also completely disappeared.
My GP had never heard of food chemical sensitivity let alone knew anything about it. If you’re interested in exploring it further your best bet would be a specialist dietician. The fedup website has a list of ones who specialise in this in Australia. Some of them also do skype consultations. My GP did provide support by putting me on a chronic health care plan via Medicare. That plan includes up to five allied health visits per year which subsidised the dietician fees, as well as review visits with the GP with no out of pocket costs. This may help meet some of the costs (Medicare chronic health care plans are potentially available to anyone with chronic health problems).
Good luck. I was in a very dark place before I got to the bottom of my health problems, but there is hope!